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Friday, January 2, 2009

Heart Ache

Hi everyone-Lisa here, Emily's oober amazing sister. For those who have not heard about Riley, I thought I would post an update:

Emily and the girls are in Texas so that my mom and I can help with all things TWIN. Monday night Riley was admitted to Texas Children's Hospital. Tests revealed that she has Dilated Cardiomyopathy. The most simple explanation is that the left ventrical of her heart is damaged and this causes her heart not to work properly. This damage is permanent. Right now the doctors are trying to determine if this damage is genetic or was caused by a virus. She is considered in heart failure. All that being said, she is doing extremely well. The doctors have said they are amazed at how well she is doing. Most babies with this condition are not eating or breathing on their own. Riley is doing both.
So far, Riley is responding well to the treatment. If she continues to do well, the prognosis is a normal life but she won't be able to participate in any sports. If she does not respond well to the treatment, the only option is a heart transplant. Because she has done well thus far, doctors are very optimistic.
Riley has been in the NICU and will stay there until Monday. Then she will be transferred to the cardiac floor. If she continues to do well there, she should be there about a week.
I will keep you posted of any changes. Please keep Riley in your prayers.


5 comments:

Tracie said...

OH man oh man. We're praying for her, and for you. We love you.

Mikey and Tracie

shari berry bo-berry said...

The twins are always in my prayers! Now Riley especially...Thanks Lisa for updating us...I hope she continues to do well! Hang in there Em and Trav!!!!!!!!

Leo said...

we will pray that everything goes well. we were hoping to see you guys before we leave (tomorrow), but we will catch you later when riley is doing better. please keep us updated. we also had something to drop off but we will send it in the mail. take care guys! happy new year!

The Chong Ohana said...

Count the Chong ohana in. We are praying for you guys.

Capturing Joy with Kristen Duke said...

in Texas, wow. Glad you will have constant help with your mom and sister. Prayers for you.